LIVE WEBINAR – Prader-Willi syndrome: challenges and best practice solutions for each life stage
Friday, 18 June 2021 from 10:00 to 11:00 CEST
Prader-Willi syndrome (PWS) is a multisystemic complex genetic disorder affecting thousands of children worldwide. Clinical manifestations and the needs of the family change with the age of the child, starting from the neonatal period. Infants with PWS have hypotonia, feed poorly and fail to thrive. During adulthood morbidity and mortality secondary to severe obesity are increased. During the period in between, other features such as short stature, food seeking with excessive weight gain, developmental delay, cognitive disability, behavioral problems and hypothalamic dysfunction become evident. Multiple endocrine abnormalities (including growth hormone and thyroid-stimulating hormone deficiencies, hypogonadism and central adrenal insufficiency) complicates management of the clinical scenario. A multidisciplinary approach and the continuation of care throughout the child’s life are essential to support patients and families as they face these issues. This live webinar is intended for healthcare professionals involved in the care of children with PWS. The main aim is to provide the most up-to-date knowledge and clinical research on PWS, to help ensure all care of patients with PWS is of the highest standard and using the latest guidelines and best practice at each stage of the patient’s life. It will provide a chance for participants to consider and refresh their understanding of PWS, and a forum for the discussion of the ongoing, unresolved issues with this condition.
After attending the live webinar participants will learn:
- How to recognize PWS in the first year of life
- What are the most important actions for the clinician to take after diagnosing a baby with PWS
- The role of rhGH from infancy until adolescence
- The benefits of continuing rhGH into adulthood
- How to manage patient follow-up throughout adulthood
- The use of technology to support patients with PWS
This activity is designed for all healthcare providers involved in the care of patients with PWS during child- and adulthood. The content will be particularly relevant to pediatricians, endocrinologists, general practitioners and nurses involved in the care of those with PWS.
The official language of this live educational activity is English.
Simultaneous translation into Spanish and Korean will be provided.
Honorary Senior Research Fellow
University of Glasgow
Child Health Section
Glasgow, United Kingdom
Professor Emeritus of Pediatric Endocrinology
William Harvey Research Institute
Barts and the London School of Medicine and Dentistry
Queen Mary, University of London, UK
Emeritus Professor of Pediatrics, Medical Genetics & Genomics
Asan Medical Center Children’s Hospital
University of Ulsan College of Medicine
10.00 Welcome and introduction – M. Savage (UK)
10.05 L1 – The Prader-Will syndrome – recognition during infancy, management in childhood and adolescence, and the role of growth hormone – M. Donaldson (UK)
10.30 L2 – Transition to adult care: could there be benefits of continuation of rhGH treatment into adult life? – Han-Wook Yoo (Korea)
10.55 P – Panel discussion
11.05 Closing remarks – M. Savage (UK)
11.10 End of the live webinar
Scientific Seminars International Foundation adheres to guidelines of the European Accreditation Council for Continuing Medical Education (EACCME®) and all other professional organizations, as applicable, which state that programs awarding continuing education credits must be balanced, independent, objective and scientifically rigorous. Investigative and other uses for pharmaceutical agents, medical devices and other products (other than those uses indicated in approved product labelling/package insert for the product) may be presented in the program (which may reflect clinical experience, the professional literature or other clinical sources known to the presenter).
We ask all presenters to provide participants with information about relationships with pharmaceutical or medical equipment companies that may have relevance to their lectures. This policy is not intended to exclude faculty who have relationships with such companies; it is only intended to inform participants of any potential conflicts so that participants may form their own judgements, based on full disclosure of the facts. Further, all opinions and recommendations presented during the program and all program-related materials neither imply an endorsement nor a recommendation on the part of Scientific Seminars International Foundation. All presentations represent solely the independent views of the presenters/authors.
The following faculty provided information regarding significant commercial relationships and/or discussions of investigational or non-EMEA/FDA approved (off-label) uses of drugs:
Malcolm Donaldson Declared no potential conflict of interest
Martin Savage Declared no potential conflict of interest
Han-Wook Yoo Declared no potential conflict of interest.
Scientific Seminars International Foundation
Senior CME Manager: Flaminia Masprone
T +39 380 1504116 – F +39 06 4827169
The official language of this live educational activity is English. Simultaneous translation into Spanish and Korean will be provided.
All Scientific Seminars International Foundation programs are organized solely to promote the exchange and dissemination of scientific and medical information. No forms of promotional activities are permitted. There may be presentations discussing investigational uses of various products. These views are the responsibility of the named speakers, and do not represent an endorsement or recommendation on the part of Scientific Seminars International Foundation.
This independent educational program is made possible thanks to an educational grant received from Merck Healthcare KGaA, Darmstadt, Germany.
Copyright 2021 Scientific Seminars International Foundation
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